ER trip last night My back and chest locked up Its a really bad feeling I would never wish something so painful even on my worst enemy It gets so bad that I can't sit down or lay down without pain.Not to mention my shoulder came out of socket . 
 I hate EDS and POtS with a passion. I usually never whine or complain but I think I should Let people know how bad it really Is.And Its Not just me Pots effects many people It effects everything that works automatic like  swallowing, heart,bp, eyes etc.Im tired of reading the message boards almost all of them complain. They tend to throw the pity poor me thing.And I thought instead of whining do something about it ! Tell your friends ,teachers,and co worker.Its one more person that knows
People allways seem to complain but they never do nothing about It That's why im doing the bake sale raise some money for research,The cause is really important to me.If they don't get enough funding they might have to drop the research program.
I know alot of you are thinking Noone cares ,The only reason they don't care is because they don't know what we go threw on a daliy bases.We need to educate show them make videos hand out flyers do anything really.Just because its not cancer or diabetes doesnt mean it Isnt Important. When reading what we go threw day to day.It makes other problems like breaking a nail,or getting stood up for a date sound silly.Every dollar counts and hey it makes you look like a better person :)
just click this link below It goes directly to BAKE SALE FOR POTS/EDS/CFS RESEARCH
Now scroll down page and you will see the words--ABOUT MY GIFT.
Click now scroll up to CHRONIC FATIGUE SYNDROME
Now under it type in--Francessca's Bake sale donations for Dr.Rowe's POTS research/CFS clinic. (so we get credit and can monitor what we make)
Then specify amount etc... The donations will go directly to him with no middle man taking a percentage.
Thank you so much---remember every little bit helps
https://jhweb.dev.jhu.edu/eforms/form.do?formId=14738

Dysautonomia Awarness Week !!!!

Dysautonomia Awareness week is soon approaching
And Ive been thinking of ways to celebrate.
I have a few ideas In mind  which I'm  going to see if i can get permission first before
I say what it is but I can Honestly say it will be very awesome 
Ive also been thinking of making some shirts to where around school
this  is my first time going back in 2 years I'm so excited.Most people don't like school ,But after two years on teleclass ,I want to go back.Not that teleclass was bad the teachers were very nice to me.Especially my math teacher  for the first time i understood math,I'm super happy to go back for senior year.So Hurricane Irene came did anyone ever notice most hurricanes start with I
It rained allot yesterday ,the lights kept flickering off and on ,Our power went out twice but came right back own  were very fortunate most people are without power.We still have allot of wind
I have been outside to excess the damage,I feel like we have been robbed of  our last few days of summer vacation. I have a great idea for awareness week any Maryland people with any for of dysautonomia are welcome  message me on facebook if your interested
http://www.facebook.com/profile.php?id=100000213605967

So Today  Was a Great Day we saw Glee the 3d movie.For those who never heard of it i guess your just old lol .It really pays to complain I usually don't like to complain about stuff even when i get a book in the mail and its ripped or the wrong version  this actually happened to me in real life
anyways usually when we get money sometimes my mom takes me to the movies something i love to do
i usually have to take my wheel chair because of crowds and lack of standing .if anyone has ever taken a wheelchair to the movies you would  know how hard it is to get in non accessible doors   with no help believe me if my mom wouldn't have been pushing me i wouldn't have been able to get in the doors myself
we had this problem several times sometimes customers hold the door open but they don't have an automatic door don't they think handicapped people go to the movies ?.Mom ended complaining about the doors.
Now whenever we go to the movies the workers open up the doors for us and the even gave us  two free tickets so we went to see glee it really pays to complain :) while i was bed ridden i spent allot of time watching shows like house and glee  i always loved singing growing up and I love music it all ways helps me calm down especially when I'm having back spasms   that's probably why I'm a fan of glee

whats wrong with the world

So I decided I definitely had to blog about this. Today.I went to therapy and then we went to the thrift shop and it snowed gum and rain drops. I'm sorry but there is definitely no way I can sugar coat this
so after therapy we did go to the thrift shop. Me and Mom ,were looking for books usually this is where I  find my babysitters club and sweet valley twins and Lurlene books. I no longer read fear street because. I finished the series. I cheated and read the recaps on blog spot, sure saved me money.

Anyways...so cd looks at me and my mom and smiles and says a four letter word. I'm sure most of you have heard for the faint of heart i shall bleep it out.  He even had a kid with them i think. And this other old fossil dinosaur with him probably about a hundred but I'm bad a guessing age. Like he was in a kid aisle  yelling f***ker over and over and over and over again. I'm shakin my head going mm mm mm and I whisper to mom," glad baby Sophie wasn't there with us." She repeats everything that she hears .My mom always says, ''children are like sponges they soak up everything they hear. " So basically there like sponge bob they absorb.  lol  I wonder what color sponge she is ?? 

Any ways mom told me the guy had turrets that he couldn't help what he was saying but idk if that was true I mean some people fake illnesses. Its hard to believe people these days. Like i heard this one girl faked cancer another faked turrets so they could cuss. I think they got that off of south park one of my fave shows  i mean i even thought of faking a strange addiction to get on tv (not really that is a joke ) sorry for offending those who don't have a sense of humor.

That's like the one time i was at the dentist and some damn people left there baby alone unattended at first I looked around to see if the guy from what would you do was video taping me unfortunately not but those people were so careless i wanted to call social service on them those are the type that deserve to get their kid  kidnapped I'm sorry but that's true you don't leave your kid alone for hours seriously. What's wrong with people today??

updates

Sorry ,Haven't posted in a while Ive been really busy and sick with the flu. That alone can surely get you down for a while. Still sick but I'm really craving some buffalo wings at 12:33. The really really hot atomic kind from bill bateman's mmmh. Usually I'm craving for a taco from taco bell but its always at 4 am. You would think that they would be open for your late taco cravings but sadly no!( I always seem to have food on my mind).

Enough about my food cravings. In other news I will be the new Saturday blogger for the dysautonomiacs. So you can look for me on there every Saturday. I never would think passing out is funny but whenever I laugh I get very very lightheaded and  dizzy ,and shakey. It feels like I'm being sucked in the couch. It makes me feel like I'm becoming the couch and that makes me laugh even more and then I faint. I usually laugh around 400 times a day so its pretty scary. 

My back locked up bad (twice this week) so that was an adventure. Took two trips to the ER. With EDS the littlest thing can put you into a spasm. It could be as simple as a hug, a laugh or just tapping me on the back. Can't stress that enough. 

Well I better log off my back starting to lock u. 


`

Fainting ,Swimming,And Seabands

Haven't posted in a while. I have  been really busy with therapy and stuff.
Went to the Dr's yesterday got real sick and passed out. Did you know syncope is a fancy word for fainting ? I recently found that out,like about a month ago . I always thought the word syncope was like a feeding tube or something crazy right ?

I don't like to dwell on symptoms to much. What's the use,worrying won't get you anywhere in life . I'm not one to rush to the hospital for pots related stuff. There is not much they can do besides give you an iv or pain killers. The only time I go to the ER is if my back and chest lock up severely for more than 3 hours.

To be honest I don't like to rant on about how sick I am. If you know me than you probably know that I hate to be sick and hate to tell people how sick i am. Like if i feel dizzy in a store DON'T EVER FEEL SORRY FOR ME !!! IT GETS ON MY FREAKIN NERVES !!! I don't know why most potsies ( girls with pots) always get wrapped up in there symptoms its like they like being sick like they love people feeling sorry for them. And the funny part is most of them that say their so sick drive cars. If your as sick as you say you are you shouldn't be driving  a car. Teen or not. It puts yourself and others at risk. If you pass out at the wheel you could harm yourself and others.

Enough ranting for today I'm going to attempt swimming. Sea bands don't fail me now :)

Happy sunday

Happy happy happy Sunday :) Just a lazy day with no appointments.Which I am glad because waking up at 8 am is not my style unless a steak egg and cheese bagel from McDonald's is included yum .

My appetite has been decreasing so that's a good sign. Yesterday I went to Chili's and only ordered off the kiddie menu and was full. Right now I'm really craving for a cheese bagel from Panera Bread.

Today ,Me and Mom are going to rent some movies from the Redbox. Only a dollar per night who can beat that, it's a bargain !!

My tonsil surgery is coming up August 17. Hope its not to much of a set back.
I had my adenoids out before and wanted potato chips the next day lol

Went to the movies yesterday saw, ''Zookeeper." It was a pretty good movie. I love playing the claw machines afterwards. I'm very determined to win a Smurfette plushie. No luck so far but I did win two plushies, a pink baby hippo
and a yellow mouse and a rubber ducky. I had a great time and that's all that matters. What makes it the best was hanging out with my awesome mom :)

Gi Test results

Good  news, my GI test came back and no GI problems. Now if we could just figure out about my swallowing. : ( 

Strangest thing happened yesterday,I lost 4 pounds in one day !! Doing nothing idk why, but I'm not complaining :) Most people lose weight from Pots but I feel like I've found it. I gained allot from meds. My weight is finally stabilized after the docs put me on Metformin. I an insulin resistance but I'm not diabetic. They sometimes use Metforimin for weight loss, to stabilize sugar. I'm also getting off Zoloft soon Dr Rowe said some times Zoloft makes people retain weight.
Hopefully I lose more,fingers crossed. 

Upper GI

Upper GI series today, not so fun. I almost couldn't do it.  The chalky stuff they give you is horrible it made me gag allot .I kept feeling like I was going to throw up. I ended up trying it again. Drinking the second one was less chalky tasting. The first drink was way worse. Hopefully they will figure out what is wrong. 

I'm very tired today I'll probably just sleep and cuddle with Dabee .


 Question of the day whats your favorite book ?

Dizzy Dabee Doll

Dizzy Dabee is the doll that I had envisioned after laying in bed sick with my POTS. This is the first one that I put together so it has some tweaking that needs to be done but it's not bad for a first attempt.

Still waiting for my POTSie friends to participate and help Dizzy Dabee travel around the world. I thought this would be a fun project to do while sick in bed. Thought it would be neat to see how many places we could get Dizzy Dabee to visit.

I haven't been feeling too good lately. The hot weather has really been taking it's toll on me even with my cooling vest. I will be glad for the cooler temps to come back ---only 2 more months to go.

have you made a dabee?

Yesterday was my "little sister's" birthday. Happy 2nd birthday Sophia. Tomorrow I probably won't be on because its her party. Tomorrow ,I got a hot date with Ronald McDonald an the nuggets. : ) 

Don't you hate it when your hips pop out? If you have EDS I'm sure you know what I'm talking about. I slipped coming down the steps. There was water on the steps and you couldn't see it. My hip came out and went right back. I walked it off in a matter of seconds but it really hurt. 

It made me think of my favorite life alert commercial:
"Help I've fallen and I cant get up! "          

I'm sorry but that commercial cracks me up. I know I shouldn't laugh about it but its hilarious.                              

Theres still time to make your dabee's, so keep them coming.


Dabee's question of the day:
How many of you like monster high ?


My question is: Are you a hot or cold potsie ?


If you have questions for us, please email dizzydabee@comcast.net

Will You Help Dizzy Dabee Travel Around The World?

Hi Potsie Friends,

My name is Francessca and I am the creator and designer of ©Dizzy Dabee. I thought it would be fun to send Dizzy Dabee around the world. This is where I need your help.

Get out your crayons, markers and stickers then go ahead and right click "save picture as" and then print out Dizzy Dabee. Once you print her then I would like you to decorate her the way you want and but you include something about your state or country so they know where she traveled.

For instance, if you are from Australia maybe you could Australia on the  flag and maybe draw a koala bear or a kangaroo. Make the art your own and let everyone know Dizzy Dabee had a wonderful trip to Australia or the USA, England etc...

I will start the journey. Here is my artwork of Dizzy Dabee as you can see she is visiting Maryland. There will be people from the same state and that's okay because everyone's art work is unique.

My goal is to see how far Dizzy Dabee can travel around the world. Therefore, tell your POTSie friends and family. Have fun with this project and once you finish your artwork of Dizzy Dabee then scan and send to DizzyDabee@comcast.net and put "Traveling Dabe" in subject line. Please include your name, age, state, country and something unique about yourself. Your art work will be posted right here Dizzy Dabee Travels

At the end of year, we will have a poll to vote which Dizzy Dabee is the best. The winner will receive a special prize. (To be announced)

Click for directions---
TRAVELING DIZZY DABEE DIRECTIONS AND ART WORK

 

short post

So I went to the Dr's today. Not too fatigued,sitting here watching south park.
Found out I need to get my tonsills out. Hopefully not a big pots set back. They are gonna keep me over night for observation because of my pots.  

I'm going to the pain clinic soon at Kennedy Krieger. They want to keep me for a month (or more) but hopefully I can be outpatient.

I recently saw a really cute Jewish boy in the Dr's office. I really want a nice Jewish husband when I grow up.

That's about all I have to say. About to go guest blog for the Dysautonomiacs
which you can read just click the link below.


http://thedysautonomiacs.blogspot.com/

Drs tomorrow (sorry no catchy name for this post )

I decided to post tonight because I'm seeing Dr Rowe the pots Dr tomorrow
and his appointment usually run long like maybe four hours but you sure do learn allot.
I'm  usually really fatigue after  and then the ENT to see if i need to get my tonsils out. I'm not nervous just hope it wont set my pots back. I really hope they figure out why i keep choking its getting very annoying and making me sick. Hope I'm not getting GI issues that would really suck.
I really understand what they say about how an illness makes you stronger and a better person
Here's five things I've learned from being sick:


1) Always appreciate what you can do  and thank God for all the good things in your life. For example:I have two eyes that work , I can talk and walk even if I cant stand long and I have a wonderful mom.


2) From being sick you tend to appreciate hanging with friends  and family.


3) I would've never even thought of wanting to be a nurse in pediatric oncology.
   Sick kids are usually a turn off, till you are one yourself.


4) You really learn to cherish every moment , like taking a bite of strawberry cheese cake from Ruby Tuesdays. You just wanna savor every bite. And you want to take time to smell the daises.


5) Over all an illness can really change your way of thinking and your prospective of the world.


Well my hands are locking up so I guess its time to sign off.

Neurotically Nauseous

Last night and today I've been super duper  nauseous. Oh jeez, i sound like Barney, the dinosaur. Fun fact, I can do the Barney voice lol. 

Surprisingly I'm not too fatigued  considering I barely slept last night.

It's funny my mom can usually bribe me with the word store and I somehow always manage to go :) I find sea bands really work wonders, you can buy them for about $5 dollars in your choice of black or blue (hehe like a bruise ). Here's what they look like:

                                                                     
I currently am wearing mine right now.Lately they have become my new best friend.  I used to wear them just for car rides but  I've been very nauseous the past few days no matter what I eat.  Sea bands work for nausea, motion sickness,sea sickness even chemo. I read it on the label.  I also find that Pepto-Bismal helps too .

It's odd for me to barely eat. I like food. I've been having trouble swallowing so I'm not even looking forward to my next meal. I hate choking on my own saliva, it's really embarrassing gagging in a restaurant . I'm supposed to have some test done soon so ill keep everyone posted.

Infectious Insomnia

I know I should go to bed considering i have PT (physical therapy )
tomorrow. I have insomnia that's a fancy word for saying I cant sleep.

So... i  figured id write some more. You already know my name but I bet you don't know these few fun facts about me ?


1) I love the color pink. My favorite shade is candy pink.


2) I am a very picky eater and hate veggies except corn.


3) I love spicy food  probably because I am Peruvian American.


4)  I know the alphabet in ASL (American sign language). I want to learn more so I am fluent.

5) My dream is to star on Disney channel and meet Joe Jonas.


Bet most of you didn't know that  did you ?  Another thing about me is that I'm not afraid to say whats on my mind. I'm not the best speller in the world , and I hate punctuation. (Sometimes my Mom edits my work which drives me crazy but she's an author and hates seeing me write endless sentences.) 

Intro - Francessca

For an introduction, I'm Francessca :) I figured for my first post I would write the first introduction unfortunately pots said, "not going to happen". Instead I spent my evening on the couch.

BTW pots did I remember to tell you that I hate you ?
Thank you Dabee for stepping in for me.

Anyways lets talk about stuff that gets on my nerves. Captchas bother me allot.  Its really hard to type them. It took me twenty minutes just to set up my blog account. Grrrr... Don't they realize i have pots and my sitting time is limited? lol

What do you picture or what comes to mind when you think of Pots ?

Intoductions

With some fabric,buttons,a little bit of fluff and some beautiful purple yarn for my long flowing hair my owner has designed me into Dizzy Dabee the Dysautonomia ragdoll. This is a picture she drew of me a long time ago. I have been many years in the making probably as many years as she's had P.O.T.S. I bet.

My owner is having a rough day. She had to go to the doctor's this morning and as you know if you too have P.O.T.S. like me and my owner that it can take allot out of a person. Gosh,don't I know it.

I have watched her through many bad times but we have had many good times too. Just like me, her bad times can mean a lot of dizziness, pain, fainting,nausea,fatigue and having trouble with her body locking up. I hate it when she's in pain cause when she's in pain so am I.

I hate it when she gets fatigued and sick as I get stuck in her bed all day. Sometimes I don't mind though cause I don't feel so good. My owner likes to squeeze me. She forgets I am full of fluff and almost squeezes the stuffing out of me. Geesh...what does she think I am--a doll?

On her good days she takes me to play with baby Sophia. What a lot of fun that can be...well sometimes. Sophia tosses me high into the air and she and Francessca will catch me before I come down for a hard landing. Sophia is funny especially when she tries to beep my nose.

Sometimes when my owner is sick I may have to write for Francessca and share my experiences (like today) when she isn't feeling good. So,I guess you can say I will be a guest blogger. Didn't know rag doll's could write did you? Well,you aren't looking at a normal ragdoll---I am Dizzy Dabee.