updates

Sorry ,Haven't posted in a while Ive been really busy and sick with the flu. That alone can surely get you down for a while. Still sick but I'm really craving some buffalo wings at 12:33. The really really hot atomic kind from bill bateman's mmmh. Usually I'm craving for a taco from taco bell but its always at 4 am. You would think that they would be open for your late taco cravings but sadly no!( I always seem to have food on my mind).

Enough about my food cravings. In other news I will be the new Saturday blogger for the dysautonomiacs. So you can look for me on there every Saturday. I never would think passing out is funny but whenever I laugh I get very very lightheaded and  dizzy ,and shakey. It feels like I'm being sucked in the couch. It makes me feel like I'm becoming the couch and that makes me laugh even more and then I faint. I usually laugh around 400 times a day so its pretty scary. 

My back locked up bad (twice this week) so that was an adventure. Took two trips to the ER. With EDS the littlest thing can put you into a spasm. It could be as simple as a hug, a laugh or just tapping me on the back. Can't stress that enough. 

Well I better log off my back starting to lock u. 


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Fainting ,Swimming,And Seabands

Haven't posted in a while. I have  been really busy with therapy and stuff.
Went to the Dr's yesterday got real sick and passed out. Did you know syncope is a fancy word for fainting ? I recently found that out,like about a month ago . I always thought the word syncope was like a feeding tube or something crazy right ?

I don't like to dwell on symptoms to much. What's the use,worrying won't get you anywhere in life . I'm not one to rush to the hospital for pots related stuff. There is not much they can do besides give you an iv or pain killers. The only time I go to the ER is if my back and chest lock up severely for more than 3 hours.

To be honest I don't like to rant on about how sick I am. If you know me than you probably know that I hate to be sick and hate to tell people how sick i am. Like if i feel dizzy in a store DON'T EVER FEEL SORRY FOR ME !!! IT GETS ON MY FREAKIN NERVES !!! I don't know why most potsies ( girls with pots) always get wrapped up in there symptoms its like they like being sick like they love people feeling sorry for them. And the funny part is most of them that say their so sick drive cars. If your as sick as you say you are you shouldn't be driving  a car. Teen or not. It puts yourself and others at risk. If you pass out at the wheel you could harm yourself and others.

Enough ranting for today I'm going to attempt swimming. Sea bands don't fail me now :)

Happy sunday

Happy happy happy Sunday :) Just a lazy day with no appointments.Which I am glad because waking up at 8 am is not my style unless a steak egg and cheese bagel from McDonald's is included yum .

My appetite has been decreasing so that's a good sign. Yesterday I went to Chili's and only ordered off the kiddie menu and was full. Right now I'm really craving for a cheese bagel from Panera Bread.

Today ,Me and Mom are going to rent some movies from the Redbox. Only a dollar per night who can beat that, it's a bargain !!

My tonsil surgery is coming up August 17. Hope its not to much of a set back.
I had my adenoids out before and wanted potato chips the next day lol

Went to the movies yesterday saw, ''Zookeeper." It was a pretty good movie. I love playing the claw machines afterwards. I'm very determined to win a Smurfette plushie. No luck so far but I did win two plushies, a pink baby hippo
and a yellow mouse and a rubber ducky. I had a great time and that's all that matters. What makes it the best was hanging out with my awesome mom :)

Gi Test results

Good  news, my GI test came back and no GI problems. Now if we could just figure out about my swallowing. : ( 

Strangest thing happened yesterday,I lost 4 pounds in one day !! Doing nothing idk why, but I'm not complaining :) Most people lose weight from Pots but I feel like I've found it. I gained allot from meds. My weight is finally stabilized after the docs put me on Metformin. I an insulin resistance but I'm not diabetic. They sometimes use Metforimin for weight loss, to stabilize sugar. I'm also getting off Zoloft soon Dr Rowe said some times Zoloft makes people retain weight.
Hopefully I lose more,fingers crossed. 

Upper GI

Upper GI series today, not so fun. I almost couldn't do it.  The chalky stuff they give you is horrible it made me gag allot .I kept feeling like I was going to throw up. I ended up trying it again. Drinking the second one was less chalky tasting. The first drink was way worse. Hopefully they will figure out what is wrong. 

I'm very tired today I'll probably just sleep and cuddle with Dabee .


 Question of the day whats your favorite book ?

Dizzy Dabee Doll

Dizzy Dabee is the doll that I had envisioned after laying in bed sick with my POTS. This is the first one that I put together so it has some tweaking that needs to be done but it's not bad for a first attempt.

Still waiting for my POTSie friends to participate and help Dizzy Dabee travel around the world. I thought this would be a fun project to do while sick in bed. Thought it would be neat to see how many places we could get Dizzy Dabee to visit.

I haven't been feeling too good lately. The hot weather has really been taking it's toll on me even with my cooling vest. I will be glad for the cooler temps to come back ---only 2 more months to go.

have you made a dabee?

Yesterday was my "little sister's" birthday. Happy 2nd birthday Sophia. Tomorrow I probably won't be on because its her party. Tomorrow ,I got a hot date with Ronald McDonald an the nuggets. : ) 

Don't you hate it when your hips pop out? If you have EDS I'm sure you know what I'm talking about. I slipped coming down the steps. There was water on the steps and you couldn't see it. My hip came out and went right back. I walked it off in a matter of seconds but it really hurt. 

It made me think of my favorite life alert commercial:
"Help I've fallen and I cant get up! "          

I'm sorry but that commercial cracks me up. I know I shouldn't laugh about it but its hilarious.                              

Theres still time to make your dabee's, so keep them coming.


Dabee's question of the day:
How many of you like monster high ?


My question is: Are you a hot or cold potsie ?


If you have questions for us, please email dizzydabee@comcast.net