Dysautonomia Awarness Week !!!!

Dysautonomia Awareness week is soon approaching
And Ive been thinking of ways to celebrate.
I have a few ideas In mind  which I'm  going to see if i can get permission first before
I say what it is but I can Honestly say it will be very awesome 
Ive also been thinking of making some shirts to where around school
this  is my first time going back in 2 years I'm so excited.Most people don't like school ,But after two years on teleclass ,I want to go back.Not that teleclass was bad the teachers were very nice to me.Especially my math teacher  for the first time i understood math,I'm super happy to go back for senior year.So Hurricane Irene came did anyone ever notice most hurricanes start with I
It rained allot yesterday ,the lights kept flickering off and on ,Our power went out twice but came right back own  were very fortunate most people are without power.We still have allot of wind
I have been outside to excess the damage,I feel like we have been robbed of  our last few days of summer vacation. I have a great idea for awareness week any Maryland people with any for of dysautonomia are welcome  message me on facebook if your interested
http://www.facebook.com/profile.php?id=100000213605967

updates

Sorry ,Haven't posted in a while Ive been really busy and sick with the flu. That alone can surely get you down for a while. Still sick but I'm really craving some buffalo wings at 12:33. The really really hot atomic kind from bill bateman's mmmh. Usually I'm craving for a taco from taco bell but its always at 4 am. You would think that they would be open for your late taco cravings but sadly no!( I always seem to have food on my mind).

Enough about my food cravings. In other news I will be the new Saturday blogger for the dysautonomiacs. So you can look for me on there every Saturday. I never would think passing out is funny but whenever I laugh I get very very lightheaded and  dizzy ,and shakey. It feels like I'm being sucked in the couch. It makes me feel like I'm becoming the couch and that makes me laugh even more and then I faint. I usually laugh around 400 times a day so its pretty scary. 

My back locked up bad (twice this week) so that was an adventure. Took two trips to the ER. With EDS the littlest thing can put you into a spasm. It could be as simple as a hug, a laugh or just tapping me on the back. Can't stress that enough. 

Well I better log off my back starting to lock u. 


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Dizzy Dabee Doll

Dizzy Dabee is the doll that I had envisioned after laying in bed sick with my POTS. This is the first one that I put together so it has some tweaking that needs to be done but it's not bad for a first attempt.

Still waiting for my POTSie friends to participate and help Dizzy Dabee travel around the world. I thought this would be a fun project to do while sick in bed. Thought it would be neat to see how many places we could get Dizzy Dabee to visit.

I haven't been feeling too good lately. The hot weather has really been taking it's toll on me even with my cooling vest. I will be glad for the cooler temps to come back ---only 2 more months to go.

have you made a dabee?

Yesterday was my "little sister's" birthday. Happy 2nd birthday Sophia. Tomorrow I probably won't be on because its her party. Tomorrow ,I got a hot date with Ronald McDonald an the nuggets. : ) 

Don't you hate it when your hips pop out? If you have EDS I'm sure you know what I'm talking about. I slipped coming down the steps. There was water on the steps and you couldn't see it. My hip came out and went right back. I walked it off in a matter of seconds but it really hurt. 

It made me think of my favorite life alert commercial:
"Help I've fallen and I cant get up! "          

I'm sorry but that commercial cracks me up. I know I shouldn't laugh about it but its hilarious.                              

Theres still time to make your dabee's, so keep them coming.


Dabee's question of the day:
How many of you like monster high ?


My question is: Are you a hot or cold potsie ?


If you have questions for us, please email dizzydabee@comcast.net

Drs tomorrow (sorry no catchy name for this post )

I decided to post tonight because I'm seeing Dr Rowe the pots Dr tomorrow
and his appointment usually run long like maybe four hours but you sure do learn allot.
I'm  usually really fatigue after  and then the ENT to see if i need to get my tonsils out. I'm not nervous just hope it wont set my pots back. I really hope they figure out why i keep choking its getting very annoying and making me sick. Hope I'm not getting GI issues that would really suck.
I really understand what they say about how an illness makes you stronger and a better person
Here's five things I've learned from being sick:


1) Always appreciate what you can do  and thank God for all the good things in your life. For example:I have two eyes that work , I can talk and walk even if I cant stand long and I have a wonderful mom.


2) From being sick you tend to appreciate hanging with friends  and family.


3) I would've never even thought of wanting to be a nurse in pediatric oncology.
   Sick kids are usually a turn off, till you are one yourself.


4) You really learn to cherish every moment , like taking a bite of strawberry cheese cake from Ruby Tuesdays. You just wanna savor every bite. And you want to take time to smell the daises.


5) Over all an illness can really change your way of thinking and your prospective of the world.


Well my hands are locking up so I guess its time to sign off.

Infectious Insomnia

I know I should go to bed considering i have PT (physical therapy )
tomorrow. I have insomnia that's a fancy word for saying I cant sleep.

So... i  figured id write some more. You already know my name but I bet you don't know these few fun facts about me ?


1) I love the color pink. My favorite shade is candy pink.


2) I am a very picky eater and hate veggies except corn.


3) I love spicy food  probably because I am Peruvian American.


4)  I know the alphabet in ASL (American sign language). I want to learn more so I am fluent.

5) My dream is to star on Disney channel and meet Joe Jonas.


Bet most of you didn't know that  did you ?  Another thing about me is that I'm not afraid to say whats on my mind. I'm not the best speller in the world , and I hate punctuation. (Sometimes my Mom edits my work which drives me crazy but she's an author and hates seeing me write endless sentences.) 

Intro - Francessca

For an introduction, I'm Francessca :) I figured for my first post I would write the first introduction unfortunately pots said, "not going to happen". Instead I spent my evening on the couch.

BTW pots did I remember to tell you that I hate you ?
Thank you Dabee for stepping in for me.

Anyways lets talk about stuff that gets on my nerves. Captchas bother me allot.  Its really hard to type them. It took me twenty minutes just to set up my blog account. Grrrr... Don't they realize i have pots and my sitting time is limited? lol

What do you picture or what comes to mind when you think of Pots ?

Intoductions

With some fabric,buttons,a little bit of fluff and some beautiful purple yarn for my long flowing hair my owner has designed me into Dizzy Dabee the Dysautonomia ragdoll. This is a picture she drew of me a long time ago. I have been many years in the making probably as many years as she's had P.O.T.S. I bet.

My owner is having a rough day. She had to go to the doctor's this morning and as you know if you too have P.O.T.S. like me and my owner that it can take allot out of a person. Gosh,don't I know it.

I have watched her through many bad times but we have had many good times too. Just like me, her bad times can mean a lot of dizziness, pain, fainting,nausea,fatigue and having trouble with her body locking up. I hate it when she's in pain cause when she's in pain so am I.

I hate it when she gets fatigued and sick as I get stuck in her bed all day. Sometimes I don't mind though cause I don't feel so good. My owner likes to squeeze me. She forgets I am full of fluff and almost squeezes the stuffing out of me. Geesh...what does she think I am--a doll?

On her good days she takes me to play with baby Sophia. What a lot of fun that can be...well sometimes. Sophia tosses me high into the air and she and Francessca will catch me before I come down for a hard landing. Sophia is funny especially when she tries to beep my nose.

Sometimes when my owner is sick I may have to write for Francessca and share my experiences (like today) when she isn't feeling good. So,I guess you can say I will be a guest blogger. Didn't know rag doll's could write did you? Well,you aren't looking at a normal ragdoll---I am Dizzy Dabee.